The Hank Chronicles

On October 16, 2008, our then 7 year old son was diagnosed with Parry Romberg Syndrome: an extremely rare, progressive, "incurable" auto-immune disease that causes facial atrophy...meaning it causes half the face to "waste" away. Some cases include seizures, strokes or other neurological problems. This is the story of our family, and specifically our son, Hank, as we struggle with diagnosis, search for a cause and a cure and go to the ends of the earth for treatment.

Wear GREEN for Hank

On Surgery Day, June 19, 2014, we asked everyone to wear GREEN for Hank and show their support. It meant to world to us, that so many people were thinking about, praying for, and took the time to not only wear green, but send and post their photos. We are still showing him the photos and the greetings...! Thank you!

The Hank Chronicles

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Wear GREEN for Hank

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