In an effort to get some nutrition in him, I just made a trip to the grocery store in search of "Carnation Instant Breakfast" and "Ensure"...poor kid is going to have an interesting milkshake! As I was driving back, I had a thought...Going to the store is so normal... driving the car is so normal...carrying your groceries into the house is normal...But going to the store in Wisconsin when you live in California is not normal...driving a big rented Suburban feels strange...Home is the Ronald McDonald House is just surreal. That's what this whole thing is...surreal. You would think we would get used to this...but no...still can't believe that this is what we do. We travel for surgeries. Poor Hank...I hope that this is the last surgery! Or at least the last one of childhood! Five surgeries is just so much...and seeing Hank in pain and unhappy is too much for me!
Hank was asked during his hospital stay, "Do you ever think about your Parry Romberg Syndrome?"
|A fun "Get Well" gift from Hank's former teacher|
|Anointing of the sick|
We let Hank lay around all day...until afternoon...but Sunday is a church day and we wanted to go to Mass and thank our Lord for getting us this far...and for Hank's surgery and recovery. Hank wasn't wanting to go...but when we said we were going to the little chapel at the hospital, he agreed. Kristina's family went too, and all nine of us made up half the congregation. After Mass, I asked the priest if he would bless Hank and Kristina as they were recovering from surgery. He quickly agreed and got out his "priest kit". He anointed each child with oil on their foreheads and then the palms of their hands. He prayed over both for a speedy recovery and peace of mind. Hank seemed to be in better spirits as we thanked Fr. Diego and headed back to the Ronald McDonald House.
|Hank and "Sully"|
Since we have not yet acclimated to Wisconsin time and are still on California time...late night snacks are the norm for us. Hank was hungry, and since eating is a challenge, we all went down to help. Applesauce, pudding, yogurt...juice...that was about it. He decided that he didn't like my smoothies...and the pain in his mouth prohibited anything else. As we sat together, we talked about his birthday and maybe we could go do something..."Maybe..." he said. What's this? A glimpse of hope? He already passed on going to the dairy at the University, so Charlie, Lucy and I went...and of course we brought back milkshakes for Hank and Dad...But the last thing I wanted was for Hank to sit in the room all day on his BIRTHDAY!
Well, at least I knew we would get out for Hank's doctor appointment...maybe getting some stitches out will make things better. One can only hope... Besides, I know the medications can make him a bit melancholy and he was taking less and less...
|Stop watching me!|
Tomorrow will be a great day! We are getting up early to decorate the dining room and kitchen. Lucy made birthday signs for Hank and we are ready to hang them up. We have a few surprises up our sleeve for Hank...and know he'll enjoy himself! We will get a smile out of him for sure!
|Last night of being age 12!|