Hank has resumed his normal activities and is feeling great! He still looks somewhat swollen and shows some discoloration, which should fade. We have sent photos to his surgeon for his opinion. It concerns me that he still looks a little "heavy" on one side and his eye isn't quite what I expected...but Hank's prognosis is good....which I will write all about...just as soon as I get a chance!
On October 16, 2008, our then 7 year old son was diagnosed with Parry Romberg Syndrome: an extremely rare, progressive, "incurable" auto-immune disease that causes facial atrophy...meaning it causes half the face to "waste" away. Some cases include seizures, strokes or other neurological problems. This is the story of our family, and specifically our son, Hank, as we struggle with diagnosis, search for a cause and a cure and go to the ends of the earth for treatment.
Friday, November 30, 2012
I can't believe it has been 8 weeks since Hank's surgery! Halloween has passed, as well as Thanksgiving and December is just a day away! Time seems to be speeding up and my intention of writing about our last days in Madison has not happened! (but it will! We had an amazing last few days there)
Hank has resumed his normal activities and is feeling great! He still looks somewhat swollen and shows some discoloration, which should fade. We have sent photos to his surgeon for his opinion. It concerns me that he still looks a little "heavy" on one side and his eye isn't quite what I expected...but Hank's prognosis is good....which I will write all about...just as soon as I get a chance!
We are gearing up for our 4th Annual Tamale Fundraiser! Taking orders now through December 7th, with delivery Dec. 14-15. (at least that is what the restaurant is telling me) This is our last fundraiser of the year...and an important one, as we are watching the bills that insurance wouldn't cover, start rolling in! (yikes!) Check back here for a more detailed update of our time at the Ronald McDonald House...of meeting another PRS patient, of Hank's teacher's sister coming to visit and good news we got at Hank's last appointment with his surgeon! Lots of blessings for this family in Madison!
Hank has resumed his normal activities and is feeling great! He still looks somewhat swollen and shows some discoloration, which should fade. We have sent photos to his surgeon for his opinion. It concerns me that he still looks a little "heavy" on one side and his eye isn't quite what I expected...but Hank's prognosis is good....which I will write all about...just as soon as I get a chance!
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How is Hank doing now? Has the swelling on his face subsided? Please post one more update on his condition.
ReplyDeleteThanks and good luck
Long time you have not updated your blog? Hope the Hank is doing well. Do post an update whenever you get time.
ReplyDeleteGod bless.
Working on an update!!
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